My husband Kyle has Hydrocephalus, and has had numerous brain surgeries throughout his life. He has been disabled for the last 6 1/2 years (probably) due to a faulty Medtronic shunt that was recently recalled earlier this year. On Wednesday he had his 19th brain surgery to replace the existing shunt with a new Progav shunt with a built in gravity sensor. The surgeon removed the Medtronic and inserted the Progav in its place. Unfortunately there was so much scar tissue in his ventricle that it was preventing the new valve from working properly, and Kyle still showed symptoms of increased intracranial pressure from the cerebrospinal fluid.

Friday the surgeon moved the valve to his front right ventricle. This is the last location in his brain that has never had a shunt before, so there was no worry of scar tissue, but it also means that if he requires further revisions, there will be no more optimum locations free of existing damage.

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The new shunt seems to be flowing perfectly; however, because of the pressure he has been dealing with, and two surgeries in a 3 day window, he is suffering mentally. His reasoning abilities are impaired much worse than usual, and his working memory is not good at all.

It’s going to take a while for his brain to reach equilibrium, and for him to be able to care for himself. It is really hard on the kids and me to see him like this. He is an amazing, brave man who has triumphed through these health challenges with such a positive attitude. We are looking forward to seeing him happy, healthy, and with a clear mind.

I’ve received numerous messages and calls expressing such an outpouring of love, prayers, and support, and we are so appreciative. It means so much to know that we are not alone in this journey.

Huge Hydro Hugs to everyone, and thank you for continuing to spread awareness for Hydrocephalus. This ribbon truly does matter!

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About hydroawareness

I have a passion for Hydrocephalus awareness, as I have three family members who suffer from it. I also created a Hydrocephalus awareness ribbon that is now being used world wide.

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