Kyle’s 19th and 20th Brain Surgeries

My husband Kyle has Hydrocephalus, and has had numerous brain surgeries throughout his life. He has been disabled for the last 6 1/2 years (probably) due to a faulty Medtronic shunt that was recently recalled earlier this year. On Wednesday he had his 19th brain surgery to replace the existing shunt with a new Progav shunt with a built in gravity sensor. The surgeon removed the Medtronic and inserted the Progav in its place. Unfortunately there was so much scar tissue in his ventricle that it was preventing the new valve from working properly, and Kyle still showed symptoms of increased intracranial pressure from the cerebrospinal fluid.

Friday the surgeon moved the valve to his front right ventricle. This is the last location in his brain that has never had a shunt before, so there was no worry of scar tissue, but it also means that if he requires further revisions, there will be no more optimum locations free of existing damage.

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The new shunt seems to be flowing perfectly; however, because of the pressure he has been dealing with, and two surgeries in a 3 day window, he is suffering mentally. His reasoning abilities are impaired much worse than usual, and his working memory is not good at all.

It’s going to take a while for his brain to reach equilibrium, and for him to be able to care for himself. It is really hard on the kids and me to see him like this. He is an amazing, brave man who has triumphed through these health challenges with such a positive attitude. We are looking forward to seeing him happy, healthy, and with a clear mind.

I’ve received numerous messages and calls expressing such an outpouring of love, prayers, and support, and we are so appreciative. It means so much to know that we are not alone in this journey.

Huge Hydro Hugs to everyone, and thank you for continuing to spread awareness for Hydrocephalus. This ribbon truly does matter!

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Hydrocephalus Awareness Month

Hi everyone! Yesterday was the first day of September, which means it’s Hydrocephalus Awareness Month! I’m still super busy going to school full time to get my physics degree, so I haven’t been able to be as involved in Hydrocephalus awareness as much as I’d like, but I wanted to at least check in with everyone. I checked my stats, and I had over 100 views on my blog yesterday, so it sounds like HAM is off to a great start.

Here again is the link to my flickr account where I have saved a lot of Hydrocephalus graphics. I recently created some higher quality vector images of the ribbon I designed, so feel free to take those and use them however you like. Don’t forget to visit my facebook page as well!

Getting Ready for September!

September is Hydrocephalus Awareness Month, and I’m busy trying to get some graphics finished before I start fall semester at the university. I am also working on adding things to the Zazzle store, and will post that link soon.

Here are some things I’ve been working on… feel free to take and use them for t-shirts, posters, memes, etc!